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By: Laura Mantine, MD
During periods of crisis, like the COVID-19 pandemic, family members and close friends continue to provide daily care for their loved ones. These caregivers provide the initial response and defense for individuals who are often battling chronic medical illnesses. Like many first responders, caregivers often experience stress due to heavy workloads, fatigue, and anxiety. There are important steps that caregivers can take to help manage and cope with this ongoing pressure.
Caregivers should develop habits and strategies to maintain their own physical health and emotional well-being. A caregiver can reduce transmission of a virus by diligent personal and patient hygiene. Washing hands with soap and water for at least 20 seconds frequently throughout the day has been shown to reduce viral spread. It is also important to wash your hands during food preparation, toileting, and blowing your nose, coughing, or sneezing. To be at your best, be sure to eat healthy, balanced meals, maintain a regular sleep routine, and find chances to exercise whenever possible. There is also a constant barrage of pandemic-focused news that can be overwhelming, so try to limit your intake to a certain time or times each day, and do not mistake social media opinion for fact. Remember to take care of yourself, as your loved one’s well-being relies on your ability to maintain your own.
Over any amount of time, caregiving can be physically, mentally, and emotionally exhausting. Caregiver burnout can happen in any caregiver-patient relationship, but the risk is heightened in times of increased stress like the COVID-19 pandemic. When suffering from burnout, a caregiver may experience hopelessness, overwhelming anxiety, sleep problems, or difficulty coping with everyday tasks. Although caregiving is a major responsibility, it shouldn’t completely overtake an individual’s life. Make time for yourself and take breaks when possible. Use these spare moments to listen to your favorite music, read, or work on a hobby. Also, stay connected to friends and family. Social distancing doesn’t mean total isolation so reach out to friends and family regularly for casual chats and wellness checks. Consider spending time together virtually, whether by watching a movie over a video chat session or playing games together online. If you live with loved ones, find ways to help and support each other.
During these uncertain times, caregivers remain a valuable constant for their loved ones. Please stay physically and mentally healthy as you perform your crucial role.
“Family Caregiving During the COVID-19 Pandemic.” Scott R Beach, Richard Schulz, Heidi Donovan, Ann-Marie Rosland. Gerontologist. 2021 Jul 13;61(5):650-660.
“Ensuring Adequate Palliative and Hospice Care During COVID-19 Surges.” Jean Abbott, MD, MH; Daniel Johnson, MD; Matthew Wynia, MD, MPH. JAMA. 2020;324(14):1393-1394.
Anger can be a common emotion we experience when we have lost someone close to us. We seek someone to blame or someone to hold responsible, someone who could have altered fate to erase what happened, and sometimes our target is the person looking back at us in the mirror. Guilt is a form of anger turned inward, and it can be one of the most challenging emotions to overcome. We look back on the time proceeding our loss, searching for something we missed, what we could have done differently, or ways we could have convinced our loved one to seek out a different course of action. Sometimes we look back and wish we had said something that we kept inside or kept something inside we regret saying.
Guilt is complex, and since the beginning of the COVD-19 pandemic it is more pervasive than ever. We might feel guilty because we were unable to visit a loved one during their final days, even if this was a result of precautions or restrictions outside the realm of our control. We might feel guilty for not taking the threat as seriously as we should have, ignoring or forgetting to take the appropriate precautions. Maybe we feel guilty we survived the virus when so many others, including people we knew or loved, succumbed to this terrible disease. This last form is often referred to as “survivor’s guilt,” and it can be very common among people who live through difficult or traumatic events. We are often ill-equipped to deal with any loss, but no one was prepared for something as widespread as COVID-19.
If you, like so many others, are struggling with guilt related to the pandemic, it can be difficult to find a way to shake how you are feeling. Here are a few things to keep in mind when you are trying to deal with your guilt feelings:
The above suggestions are just a few ways to start down the path to forgiving yourself and getting past your feelings of guilt. If you or someone you know is struggling with issues related to COVD-19 or any other difficult life event, there is help and support available in your community. You can call our agency anytime and our family support staff will help get you to the help you need. You can also reach out to the National Alliance on Mental Illness at 800-950-6264 or if you or someone you know is struggling with thoughts of self-harm please contact the National Suicide Prevention Lifeline at 800-273-8255.
Oasis Healthcare offers individualized in-home hospice care, allowing patients a peaceful end-of-life experience in a familiar and secure environment. We provide a full spectrum of hospice services uniquely designed for each patient.